That's Me! Erika
This Was My Family
Meet Ken and Alexis. They were my family. This is the last day we spent as a family before Ken became ill and ended up in the hospital
Persona 1: Ken, my husband
Married, Executive Chef One Child a daughter
Daughter is very close to her father.
Father feels like every time he gets ahead, something pulls him back, but he keeps trying because of his bond wiht his child. Keeps saying, "i feel like i'm gonig to die" and wife and daughter tell him that he is being silly.
Very scared of hospitals, since only exposure has been with death at them.
Diagnosed with AIDS received from a night in vegas.
Has to explain to wife and child.
"I just can't win, yeah , I made a mistake but does that mean i have to die for it?"
at time of discharge he is not able to focus on what is being told to him. His wife has gone to deal with things and get herself checkedout and the daughter is scared and so she stays away with her friends.
So Ken is left there to try and comprehend a litany of informaiton, regulations, education, dos and don'ts and it becomes a "blahblahblahblahblahblahblah" soliliquy by the discharge nurse
Persona 2: Alexis, my daughter3
A week after she turns eighteen, is required to make the decision as the MPOA, to disconnect her father from life support. Unable to reach her mother, unable to talk to her dad, lost and alone, she ages from 18 into well past most mature thirty year olds in a matter of hours. She has spent the last few weeks inbetween hospital diagnosis , discharge and learning how to help her dad with medications and diet, lifestyle changes etc, she harbors fears and guilt that something she did with the medications caused this to happen.
The Cause Of His Death & The Destruction Of A Family
They would later find out that there had been a glitch in the system at the hospital and some meds were left out . The important ones, that have life threatening risks attached to them if they are taken together or with certain types of food.
Not every person has the luxury of being able to read printed instrucctions deleivered fresh from the copier to them by the nurse. to this day, there are hospitals and nursing facilities out there where this handwritten nightmare is still the norm. Now, imagine if you were dealt the blow of ken's diagnosis. Would you be in the right frame of mind to decypher that on your own when you got home?
UXDC:Nurses have been UX'ing Before UX'ing Was A Thing
My talk at the UXDC'17 about my discovery of UX and how I went about trying to change the user experience for patients and staff.